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    Last Updated: 10/30/2025

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    MediFind found 8 doctor with experience in Crouzon Syndrome near Grand Rapids, MI. Of these, 4 are Advanced and 4 are Experienced.

    Location
    LocationClose
    8 providers found
      Anna Carlson
      Advanced in Crouzon Syndrome
      Pediatrics | General Surgery
      Advanced in Crouzon Syndrome
      Pediatrics | General Surgery

      Corewell Health Pediatric Craniofacial And Plastic Surgery - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5201, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English
      Accepting New Patients

      Anna Carlson is a Pediatrics specialist and a General Surgeon in Grand Rapids, Michigan. Dr. Carlson has been practicing medicine for over 11 years and is rated as an Advanced provider by MediFind in the treatment of Crouzon Syndrome. Her top areas of expertise are Craniosynostosis, Plagiocephaly, Metopic Ridge, Osteotomy, and Bone Graft. Dr. Carlson is currently accepting new patients.

      John A. Girotto
      Advanced in Crouzon Syndrome
      General Surgery | Plastic Surgery
      Advanced in Crouzon Syndrome
      General Surgery | Plastic Surgery

      Corewell Health Pediatric Craniofacial And Plastic Surgery - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5201, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      31+ years
      Languages Spoken:
      English
      Accepting New Patients

      John Girotto is a General Surgeon and a Plastic Surgeon in Grand Rapids, Michigan. Dr. Girotto has been practicing medicine for over 31 years and is rated as an Advanced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Autosomal Cleft Palate, Pierre Robin Sequence, Goldenhar Disease, Osteotomy, and Bone Graft. Dr. Girotto is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Joseph A. Petronio
      Advanced in Crouzon Syndrome
      General Surgery
      Advanced in Crouzon Syndrome
      General Surgery

      Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      41+ years
      Languages Spoken:
      English
      Accepting New Patients

      Joseph Petronio is a General Surgeon in Grand Rapids, Michigan. Dr. Petronio has been practicing medicine for over 41 years and is rated as an Advanced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Chiari Malformation, Chiari Malformation Type 1, Brain Herniation, and Hydrocephalus. Dr. Petronio is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Crouzon Syndrome
      Plastic Surgery
      Advanced in Crouzon Syndrome
      Plastic Surgery
      35 Michigan St NE Ste 5201, 
      Grand Rapids, MI 
       (0.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      John Polley is a Plastic Surgeon in Grand Rapids, Michigan. Dr. Polley is rated as an Advanced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Crouzon Syndrome, Goldenhar Disease, Acrofacial Dysostosis Rodriguez Type, Osteotomy, and Adenoidectomy. Dr. Polley is currently accepting new patients.

      Joseph C. Taylor
      Experienced in Crouzon Syndrome
      Otolaryngology
      Experienced in Crouzon Syndrome
      Otolaryngology

      Michigan Ear Nose Throat & Allergy Specialists - Grand Rapids

      1425 Michigan Street Northeast, Suite A, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      22+ years
      Languages Spoken:
      English
      Accepting New Patients

      Joseph Taylor is an Otolaryngologist in Grand Rapids, Michigan. Dr. Taylor has been practicing medicine for over 22 years and is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Enlarged Adenoids, Laryngomalacia, Empyema, Sinusitis, and Septoplasty. Dr. Taylor is currently accepting new patients.

      Experienced in Crouzon Syndrome
      Hand Surgery | Plastic Surgery
      Experienced in Crouzon Syndrome
      Hand Surgery | Plastic Surgery

      Hand & Plastic Surgery Centre - Grand Rapids

      245 Cherry Street Southeast, Suite 302, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English
      Accepting New Patients

      Matthew Fahrenkopf is a Hand Surgeon and a Plastic Surgeon in Grand Rapids, Michigan. Dr. Fahrenkopf has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Ganglion Cyst, Carpal Tunnel Syndrome, Rhizarthrosis, Osteotomy, and Tenotomy. Dr. Fahrenkopf is currently accepting new patients.

      Robert L. Daniels
      Experienced in Crouzon Syndrome
      Otolaryngology
      Experienced in Crouzon Syndrome
      Otolaryngology

      Ear Nose & Throat Center - Grand Rapids

      655 Kenmoor Avenue Southeast, Suite A, 
      Grand Rapids, MI 
       (7.8 miles away)
      Experience:
      34+ years
      Languages Spoken:
      English
      Accepting New Patients

      Robert Daniels is an Otolaryngologist in Grand Rapids, Michigan. Dr. Daniels has been practicing medicine for over 34 years and is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Meniere Disease, Cholesteatoma, Infant Hearing Loss, Acoustic Neuroma, and Myringotomy. Dr. Daniels is currently accepting new patients.

      Andrew C. Heaford
      Experienced in Crouzon Syndrome
      Pediatric Otolaryngology
      Experienced in Crouzon Syndrome
      Pediatric Otolaryngology

      Corewell Health Ear, Nose And Throat - 4069 Lake Dr SE

      4069 Lake Drive Southeast, Suite 315, 
      Grand Rapids, MI 
       (7.8 miles away)
      Experience:
      20+ years
      Languages Spoken:
      English
      Accepting New Patients

      Andrew Heaford is a Pediatric Otolaryngologist in Grand Rapids, Michigan. Dr. Heaford has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Crouzon Syndrome. His top areas of expertise are Laryngomalacia, Enlarged Adenoids, Larynx Atresia, and Laryngeal Cleft. Dr. Heaford is currently accepting new patients.

      Showing 1-8 of 8

      Last Updated: 10/30/2025

      What is the definition of Crouzon Syndrome?

      Crouzon syndrome is a genetic disorder characterized by the premature fusion of certain skull bones (craniosynostosis). This early fusion prevents the skull from growing normally and affects the shape of the head and face.

      When should I see a Crouzon Syndrome doctor near Grand Rapids, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Crouzon Syndrome doctor near Grand Rapids, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Crouzon Syndrome doctors near Grand Rapids, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Crouzon Syndrome doctors near Grand Rapids, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Crouzon Syndrome doctor near Grand Rapids, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Crouzon Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Crouzon Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Crouzon Syndrome doctor near Grand Rapids, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Crouzon Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Crouzon Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Crouzon Syndrome doctors near Grand Rapids, MI?

      Look for the filter feature on the left side of the Crouzon Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Crouzon Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Crouzon Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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